Paediatric palliative care developed starting in 1990 within paediatric onco-haematology units thanks to private, intra-hospital and non-hospital initiatives.
In November 2010 the royal decree setting accreditation standards for the “paediatric liaison” function was issued. In the framework of action 23 of the National Cancer Plan , two liaison teams have been recognised and financed in the Brussels-Capital Region, one affiliated with the Queen Fabiola Children's University Hospital (QFCUH) and the other with the Cliniques Universitaires Saint-Luc. Their mission is to improve and support home care for children suffering from chronic severe pathologies that began before the age of 18.
The royal decree specifies the composition of these multidisciplinary teams from the hospital: a paediatrician trained in pain management, nurses, a psychologist and an administrative assistant. They are trained in paediatric palliative care.
The liaison team at QFCUH dates from 2002. The special feature of QFCUH, a solely paediatric hospital, is that palliative paediatric care is developed via two teams who work in close collaboration to develop the palliative approach both within the hospital and at home : a multidisciplinary mobile palliative care team (paediatrician, nurse, psychologist) and a nursing liaison team including four part-time nurses, an information coordinator and a referring paediatrician.
At the Cliniques Universitaires Saint-Luc, the paediatric liaison team has existed since 1992. It now includes nurses supported by a psychologist and specialist physicians, paediatricians or anaesthetists. This team has an internal function at the hospital of support to the care teams, listening and training in palliative culture, and an external function of ensuring comprehensive care for children who are very severely ill or near the end of their lives during their return home.
These two teams care for a growing number of children, a significant proportion of whom are less than one year old. They follow up on families who have lost a child during the year following the death.
Initiatives have also arisen to support parents of children suffering from chronic illnesses confronted with major difficulties : Respite Homes (Villa Indigo), the Cité Sérine, and expressive workshops for siblings are examples.
 Plan National Cancer, action 23, financement d'une fonction "liaison pédiatrique" [url]
Missions of paediatric liaison teams
Paediatric liaison teams guarantee continuity of care from the hospital to home and comprehensive care of the child who is ill and his family at their home.
They assist caregivers, parents and their children in the curative, palliative and post-palliative phases.
They oversee the organisation of care at home (home nursing care, home health aide, general practitioner) and ensure communication between home care and the hospital team.
Plan National Cancer, action 23, financement d'une fonction "liaison pédiatrique".